I am sure by now you are all wondering if everything is okay since I have not blogged in a few days.
I am happy to report that everything is going super! Momisan continues to get stronger each and everyday. Her nurse Nancy has taken very good care of her and all her wounds are just about healed. Mom’s physical therapist is another miracle worker. All those exercises she has her doing are really paying off. I have noticed that momisan moves much more quickly and does not seem so stiff and in pain. So thank you Nancy and Cathy for keeping her on the road to recovery.
Today I arrived at Casa de Longo to take mom to her one month follow-up with her radiologist. I can not believe it has been a month already!
We arrived at Medical City, early (we always do) and spent a few minutes catching up with everyone. They all said momisan looks great and they love the way the hair is starting to grown in – she looks smokin’ hot!
We updated some paper work and signed those pesky HIPPA forms again then proceeded to meet with Dr. Macko.
We filled the doctor in on all the “special” events that have taken place over the past thirty days and at the end of our recap, she looked at mom and said, “You’ve been through hell…but you look wonderful!” That’s the kind of stuff you like to hear.
Dr. Macko gave her the once over and took a look at her handy work after 25 radiation treatments. She said that the area was a little red, but all in all, momisan was healing nicely and it was time for them to part ways. Dr. Macko gave mom her walking papers today because the radiation treatment has done what it was intended to do. Sadly, we can remove one doctor from our “Dream Team” list. Their work is done and mom is a walking testament to that. Besides, they have other people to heal, so we wished them well and will pray that they will have many more success stories for other families.
That leaves TeamLoco in a little bit of limbo until April. So we have decided to celebrate how far we have come on this journey, by giving back.
We are organizing a Relay for Life Team that raises funds for the American Cancer Society. I have often said that even though this has been a difficult path to walk, we have encountered a bounty of blessings along the way and we wanted to honor those gifts by giving something back.
We are gathering members for Team Loco. Our team will participate in a Relay for Life on April 20th – April 21st in nearby Frisco, Texas. The Relay for Life is a magical evening that brings together cancer fighters, supports and caregivers so that we may celebrate, remember and hope.
During this event our team members will walk from 6pm (April 20th) – 6am (April 21st). There will be a special Survivor’s Lap that we hope mom’s therapist will have her ready for. (hint…hint…)
You can learn more about the event here: Frisco Relay for Life
You can show your support by joining Ida’s team and walking with us or by making a general donation to the American Cancer Society in her honor. Please visit our web site for more details or to donate and support Team LoCo: Team Loco – Proudly Supporting Ida’s Fight
I often find myself reflective in the evening, especially after momisan has received a positive medical update. I am amazed at how far she has come. It’s nothing short of miraculous if you think about. She is one in a million and I hope that her journey inspires just one other person to keep fighting.
It seems appropriate that on this leg of our journey, we take some time and give back. For all the support, love and prayers that we have been given, we should pay it forward to someone who might need it more. That’s why we formed a relay team – to celebrate all those blessings that the good Lord has bestowed upon us during this walk.
When we relay on April 20th, we do it for each an every one of you for supporting and praying for this family during the past year.
God Bless each and every one of you who have been there when we have needed you most.
…and please support Ida’s Fight at: Team Loco – Proudly Supporting Ida’s Fight
Val
Wednesday, March 21, 2007
Thursday, March 15, 2007
Either You Have It or Know Someone Who Does.
What a gorgeous day we had in Texas today. Clear, blue, sunny skies with just enough breeze to make you stop and take notice.
I arrived at Casa de Longo around 10:25 this morning. Momisan had a follow-up with her primary care physician and we thought we would grab a cup of Joe after the appointment. As I entered the house and made my way to the kitchen, I could sense that mom was a little off today – she seemed a bit sad. I asked her what was wrong and she sad she woke up fine, but was just having one of those days. Come to find out later that she had been catching up on some of her blog reading…and let’s face it folks, some of the stuff we have shared will bring a tear to anyone’s eye.
As we walked towards the front, I told mom not to worry, there was still plenty of time in the day to turn it around. And as she stepped off the porch and headed towards the car, she stopped and looked up and said, “It’s beautiful outside.” – just goes to show that even the smallest things can change the course of your day.
We arrived at Dr. Z’s office and he gave mom the once over – kicked the tires and looked under her hood and then he looked at me and said, “She takes a lickin’ and keeps on tickin.” …and he should know since he has been taking care of momisan for twenty-eight years! He said she looks well. She’s moving with less stiffness thanks to her physical therapist and her wounds are healing nicely. No changes in her medication and he said that her job now was to rest and eat well in order to battle some of the fatigue and to get her strength back.
As I escorted mom out of the doctor’s office, I forgot that he wanted to see her a few days before we went to visit the oncologist in April, so I told mom I was going back in to set an appointment…since doctor’s offices are sometimes so darn hard to get into. As mom sat down in the waiting room, I went through another set of doors and proceeded to chat with the nurse about setting the appointment. As we were talking, she told me that she can’t believe that my mom has Cancer and is doing so well. We started talking about hospitals and treatments and when I told her that we drive to Medical City in Dallas, she stated that you could not have picked a better facility. That’s what everyone says about Med City – it’s a hospital for healing and they do some remarkable work there.
I started to head back towards the waiting area when a lady standing behind me introduced herself and said she too had Cancer and she also went to Medical City due to their phenomenal reputation. We talked for a few moments and I wished her well as she continued her journey and I promised to say a few extra prayers for her and her family. And as I started to work my way to momisan, it hit me. When it comes to Cancer, you either have it or you know someone who does – that’s how prevalent it is.
Perhaps I am much more acute since Cancer has pretty much taken over our daily schedule, but it seems every place momisan and I go, someone will come up to us and tell us that are fighting the same fight or know someone who is – it boggles my mind!
Then I think about all the people out there that are just like me, or just like my brother Andy or pop. The people out there that are doing the best they can to support and care for all these people with Cancer.
Behind each of these Warriors is a sea of people dedicated to their care and support, without thought or hesitation. Together, we are the ChemoSabe Nation.
As I reflect upon yet another end to a day, I am thankful for the time momisan and I shared today and the positive report from her primary care physician. And tonight, when I lay my head upon my pillow, I will say an extra prayer for all those individuals who didn’t ask to be a part of the ChemoSabe Nation, but who do it without hesitation or regret. My wish for all of you is that you have the love and support you need to continue on the journey that you were called to do.
Blessings to you all!
Val
I arrived at Casa de Longo around 10:25 this morning. Momisan had a follow-up with her primary care physician and we thought we would grab a cup of Joe after the appointment. As I entered the house and made my way to the kitchen, I could sense that mom was a little off today – she seemed a bit sad. I asked her what was wrong and she sad she woke up fine, but was just having one of those days. Come to find out later that she had been catching up on some of her blog reading…and let’s face it folks, some of the stuff we have shared will bring a tear to anyone’s eye.
As we walked towards the front, I told mom not to worry, there was still plenty of time in the day to turn it around. And as she stepped off the porch and headed towards the car, she stopped and looked up and said, “It’s beautiful outside.” – just goes to show that even the smallest things can change the course of your day.
We arrived at Dr. Z’s office and he gave mom the once over – kicked the tires and looked under her hood and then he looked at me and said, “She takes a lickin’ and keeps on tickin.” …and he should know since he has been taking care of momisan for twenty-eight years! He said she looks well. She’s moving with less stiffness thanks to her physical therapist and her wounds are healing nicely. No changes in her medication and he said that her job now was to rest and eat well in order to battle some of the fatigue and to get her strength back.
As I escorted mom out of the doctor’s office, I forgot that he wanted to see her a few days before we went to visit the oncologist in April, so I told mom I was going back in to set an appointment…since doctor’s offices are sometimes so darn hard to get into. As mom sat down in the waiting room, I went through another set of doors and proceeded to chat with the nurse about setting the appointment. As we were talking, she told me that she can’t believe that my mom has Cancer and is doing so well. We started talking about hospitals and treatments and when I told her that we drive to Medical City in Dallas, she stated that you could not have picked a better facility. That’s what everyone says about Med City – it’s a hospital for healing and they do some remarkable work there.
I started to head back towards the waiting area when a lady standing behind me introduced herself and said she too had Cancer and she also went to Medical City due to their phenomenal reputation. We talked for a few moments and I wished her well as she continued her journey and I promised to say a few extra prayers for her and her family. And as I started to work my way to momisan, it hit me. When it comes to Cancer, you either have it or you know someone who does – that’s how prevalent it is.
Perhaps I am much more acute since Cancer has pretty much taken over our daily schedule, but it seems every place momisan and I go, someone will come up to us and tell us that are fighting the same fight or know someone who is – it boggles my mind!
Then I think about all the people out there that are just like me, or just like my brother Andy or pop. The people out there that are doing the best they can to support and care for all these people with Cancer.
Behind each of these Warriors is a sea of people dedicated to their care and support, without thought or hesitation. Together, we are the ChemoSabe Nation.
As I reflect upon yet another end to a day, I am thankful for the time momisan and I shared today and the positive report from her primary care physician. And tonight, when I lay my head upon my pillow, I will say an extra prayer for all those individuals who didn’t ask to be a part of the ChemoSabe Nation, but who do it without hesitation or regret. My wish for all of you is that you have the love and support you need to continue on the journey that you were called to do.
Blessings to you all!
Val
Wednesday, March 14, 2007
Peace and Love
I awoke extra early today anticipating the 11:30 performance of Cirque de Ida at Casa de Longo. Today was the day that mom started her physical therapy and I had envisioned seeing some pretty fancy contortionist’s moves and perhaps a backward spin from the ceiling fan in the living room.
But alas, this was not to be! But I did get to meet mom’s therapist, Cathy. A very nice young woman that had mom doing laps through the living room and kitchen – it was an indoor track. Mom looked good today. Still physically tired, but emotionally, this was a red letter day. It is important to keep them moving, whether they are eight or eighty, the only way to keep a Cancer patient strong is to ensure that they get some type of activity.
Her therapist said she is doing remarkable well and I confided that I was a bit disappointed that she didn’t move mom like a bendy straw. She just laughed and said, give us until next month. “The first month is usually the meet and greet and working on some basics.” She continued, “The second month is when I really crack the whip.”
I think that was a big pick me up for momisan to have her therapist give her the “gold star” for the day.
During my visit today, I also got to meet her nurse, Nancy. Again a very nice woman who comes in and checks momisan over and ensures that her wound and infection are both healing nicely. She also said mom is doing very well and she is pleased with her progress.
Nancy and mom struck up an interesting conversation about Cancer and the various stages. It seems Nancy’s youngest sister was recently diagnosed with Stage 4 breast Cancer that has invaded her sternum. She is undergoing radiation and she said that it is difficult for her family to see their sibling in such pain. My heart really went out today and she got an extra hug. Please pray for her sister and all those who are undergoing treatment for Cancer that their pain is minimal and their remission is quickly achieved and sustained for many…many…years.
I lent mom and pop our DVD of the Da Vinci Code. They had not seen the movie yet and I figured they would really enjoy a good movie based on conspiracy and intrigue. While I know it’s fiction, I can’t tell you how many times I blew up a picture of the Last Supper in Photoshop to see if that could have been Mary Magdalene seated next to Jesus. It’s hard to tell since everyone had long hair back then. But as long as mom and pop enjoy the movie…that’s really all that matters.
Speaking of conspiracy and intrigue, I added a little bit to my home office this week. One of my birthday presents was a high-end web cam. Now, while I mostly use it for work and online video conferencing, I just may turn it into MomCam after hours. Pop has two, one in his office and the other is strategically placed on his laptop…they can run….but they can’t hide!
We are scheduled to follow up with mom’s primary care physician tomorrow. And that is a very important thing for a Cancer patient to do. We have so many doctors and nurses who specialize in the treatment of Cancer, that they always suggest following up with your primary doctor every few months since they are the ones that you will go back to once your Cancer treatment is over, with the exception of regular follow-ups and scans with your oncologist.
In the meantime, I was thinking about taking mom to the airport after hours to compete with the Hari Krishnas. Who would not want to hear the words of wisdom and inspiration straight from the Dolly Momma?
She is doing well and she is getting plenty of love and care. We thank you all for your prayers, love and continued support.
The Dolly Momma says…”Peace and Love Be with You!” 
But alas, this was not to be! But I did get to meet mom’s therapist, Cathy. A very nice young woman that had mom doing laps through the living room and kitchen – it was an indoor track. Mom looked good today. Still physically tired, but emotionally, this was a red letter day. It is important to keep them moving, whether they are eight or eighty, the only way to keep a Cancer patient strong is to ensure that they get some type of activity.
Her therapist said she is doing remarkable well and I confided that I was a bit disappointed that she didn’t move mom like a bendy straw. She just laughed and said, give us until next month. “The first month is usually the meet and greet and working on some basics.” She continued, “The second month is when I really crack the whip.”
I think that was a big pick me up for momisan to have her therapist give her the “gold star” for the day.
During my visit today, I also got to meet her nurse, Nancy. Again a very nice woman who comes in and checks momisan over and ensures that her wound and infection are both healing nicely. She also said mom is doing very well and she is pleased with her progress.
Nancy and mom struck up an interesting conversation about Cancer and the various stages. It seems Nancy’s youngest sister was recently diagnosed with Stage 4 breast Cancer that has invaded her sternum. She is undergoing radiation and she said that it is difficult for her family to see their sibling in such pain. My heart really went out today and she got an extra hug. Please pray for her sister and all those who are undergoing treatment for Cancer that their pain is minimal and their remission is quickly achieved and sustained for many…many…years.
I lent mom and pop our DVD of the Da Vinci Code. They had not seen the movie yet and I figured they would really enjoy a good movie based on conspiracy and intrigue. While I know it’s fiction, I can’t tell you how many times I blew up a picture of the Last Supper in Photoshop to see if that could have been Mary Magdalene seated next to Jesus. It’s hard to tell since everyone had long hair back then. But as long as mom and pop enjoy the movie…that’s really all that matters.
Speaking of conspiracy and intrigue, I added a little bit to my home office this week. One of my birthday presents was a high-end web cam. Now, while I mostly use it for work and online video conferencing, I just may turn it into MomCam after hours. Pop has two, one in his office and the other is strategically placed on his laptop…they can run….but they can’t hide!
We are scheduled to follow up with mom’s primary care physician tomorrow. And that is a very important thing for a Cancer patient to do. We have so many doctors and nurses who specialize in the treatment of Cancer, that they always suggest following up with your primary doctor every few months since they are the ones that you will go back to once your Cancer treatment is over, with the exception of regular follow-ups and scans with your oncologist.
In the meantime, I was thinking about taking mom to the airport after hours to compete with the Hari Krishnas. Who would not want to hear the words of wisdom and inspiration straight from the Dolly Momma?
She is doing well and she is getting plenty of love and care. We thank you all for your prayers, love and continued support.
The Dolly Momma says…”Peace and Love Be with You!”
Monday, March 12, 2007
Two More to Forty!
Well, today is March the 12th and it is another day that will live in infamy. It was 38 years ago today that the stork decided to drop that special little package, earmarked for Ida Longo, on the front door step.
Now, I had a relatively quiet birthday today. I hate to celebrate on a weeknight, so we'll have a few "birthdatinis" this Friday. I had a singing phone message from my brother, Andy. I had friends call and email me their smartass comments about turning another year older and how I had two more years until forty ... and then I got “the look” from mom.
I had already planned on being with mom and pop today since we had scheduled to have her drainage tube removed last week. And to tell you the truth, I had forgotten that it was my birthday with all the hospital chaos. I arrived at Casa de Longo around 11:15 this morning and mom was wielding a birthday card in her hand with such excitement I had to duck before she cut my jugular!
We ran through our pre-flight checklist – cane, insurance cards, doctor’s phone numbers, list of questions and her handi sticker for parking. Once we knew we had everything, we loaded up and headed out. We had to go back to the hospital that mom didn’t particular care for during her recent stay. Since they put the tube in, they were the ones who had to take it out. We got her all signed in and waited for her name to be called.
Here is where I first noticed, “the look.” I looked over and caught mom starring at me. Maybe it was because it was my birthday and she was probably taking a little walk down her maternal memory lane, but her eyes started to tear up – there is a lot of love and gratitude in those peepers. I leaned over and asked why she was crying and she said no particular reason – LIAR! I know what she’s thinking!
She proceeded to tell me that when I opened my birthday card, that there was a yellow note that I had to read separately. Of course I asked, “Am I going to need Kleenex”? And she just shook her head in affirmation. Have I mentioned that I hate it when she makes me cry? But she proceeded to tell me that if she didn’t tell me, then I would not know what is in her heart. I told her that she was mistaken. I can tell by “the look” what is in her heart – there are no words written or spoken that can compete with “the look.” I get it momma and I understand – the feeling is mutual.
As we proceeded to wait for the calling of her name, she closed her eyes a bit to rest. I told her that hopefully we would not have to wait too much longer to check in. To which mom replied, “I have spent the past seven months checking in.” I looked at her and said it beats the alternative, “checking out.” She started to laugh and mentioned something about “always knowing what to say.” Yep, that’s one of my many job functions that I embrace – CEO of Smartass Retorts! :o)
Her medical pager finally went off and we were ushered back to the CT room were they would remove the drainage tube. We got momisan all settled in on that little bed that passes through the giant donut and then proceeded to the hall way to wait. As pop paced up and down, I saw a gentleman in a white coat cross the hall and say, “Ida Longo.”
I have mentioned before that mom had “chemo brain.” I on the other hand have developed a super sensitivity to those words, “Ida Longo.” I am always eavesdropping on the other side of the door to make sure that they are taking good care of momisan. Now, because I am not bashful, I poked my head into the door and asked the doctor if everything was okay. He said, “Yes” but they could not remove the tube because it was still draining. I informed him that momisan was a cancer patient who had undergone a lymphectomy and regardless of whether the tube was left in or removed, it was still going to drain some. He looked rather irritated that I had questioned his white coat authority, so I told him to call her oncologist for further direction. Why is it some doctors hate to be questioned?
After fifteen minutes, mom emerged from the CT room a bit shaken and with some pain. Dr. “Personality” explained that he went ahead and removed the tube after speaking to her oncologist and gave us a brief synopsis of what to watch for and he disappeared down the long, white hallway. The thing with Cancer patients, especially those that have undergone surgery, chemo and radiation is that their bodies react a bit differently to treatment. So while mom’s continuing drainage might be an issue for a surgeon, for an oncologist it is a common occurrence. So my advice for anyone supporting a Cancer patient is ask those questions regardless of how irritated the “little white coats” become, especially if you are using an unfamiliar physician.
We had a technician wheel mom to the parking garage and everyone piled in for the ride home. Mom got comfy and I ran out to get a cheese pizza for lunch. We ended the day on a high note – me, mom and pop sitting on the porch, eating a slice al fresco.
As my birthday nears its conclusion, I was contemplating what I would wish for. Thirty years ago it was a pony, Babies and one of those Easy Bake ovens. During the past few years, I realize that I no longer wish or really want for anything tangible. I guess that is a sign of maturity when you realize that your house is in order and you don’t really want for anything – life is SUPERB!
One would think that there are not too many things on my eighty year old mother’s “must see” list. She has done a lot and seen so much more. I remember on my thirtieth birthday, before I had met my husband, I would sometimes wonder if mom would see me married…I know she thought the same thing too! Thankfully, we crossed that off the list three years ago. Now I would be lying if I said I did not think about her being around for at least one grandchild on the Conley side of the tree – that would just put her over the edge of uncontrollable euphoria. And yes, I know at 38, my window of opportunity is closing! I can’t help it if it took James so long to get here.
So that is my birthday wish tonight, God…as selfish as I know it sounds. Please let my mom enjoy many mores years on this earth to witness the birth of another grandchild. That is the greatest gift I could ever receive, to see my mom hold my baby like she held me thirty-eight years ago, today.
Val
(Looking a little tired today, but holy cannoli...look at that hair growing in. The texture has changed and it's a very nice "salt and pepper" mixture.)
Now, I had a relatively quiet birthday today. I hate to celebrate on a weeknight, so we'll have a few "birthdatinis" this Friday. I had a singing phone message from my brother, Andy. I had friends call and email me their smartass comments about turning another year older and how I had two more years until forty ... and then I got “the look” from mom.
I had already planned on being with mom and pop today since we had scheduled to have her drainage tube removed last week. And to tell you the truth, I had forgotten that it was my birthday with all the hospital chaos. I arrived at Casa de Longo around 11:15 this morning and mom was wielding a birthday card in her hand with such excitement I had to duck before she cut my jugular!
We ran through our pre-flight checklist – cane, insurance cards, doctor’s phone numbers, list of questions and her handi sticker for parking. Once we knew we had everything, we loaded up and headed out. We had to go back to the hospital that mom didn’t particular care for during her recent stay. Since they put the tube in, they were the ones who had to take it out. We got her all signed in and waited for her name to be called.
Here is where I first noticed, “the look.” I looked over and caught mom starring at me. Maybe it was because it was my birthday and she was probably taking a little walk down her maternal memory lane, but her eyes started to tear up – there is a lot of love and gratitude in those peepers. I leaned over and asked why she was crying and she said no particular reason – LIAR! I know what she’s thinking!
She proceeded to tell me that when I opened my birthday card, that there was a yellow note that I had to read separately. Of course I asked, “Am I going to need Kleenex”? And she just shook her head in affirmation. Have I mentioned that I hate it when she makes me cry? But she proceeded to tell me that if she didn’t tell me, then I would not know what is in her heart. I told her that she was mistaken. I can tell by “the look” what is in her heart – there are no words written or spoken that can compete with “the look.” I get it momma and I understand – the feeling is mutual.
As we proceeded to wait for the calling of her name, she closed her eyes a bit to rest. I told her that hopefully we would not have to wait too much longer to check in. To which mom replied, “I have spent the past seven months checking in.” I looked at her and said it beats the alternative, “checking out.” She started to laugh and mentioned something about “always knowing what to say.” Yep, that’s one of my many job functions that I embrace – CEO of Smartass Retorts! :o)
Her medical pager finally went off and we were ushered back to the CT room were they would remove the drainage tube. We got momisan all settled in on that little bed that passes through the giant donut and then proceeded to the hall way to wait. As pop paced up and down, I saw a gentleman in a white coat cross the hall and say, “Ida Longo.”
I have mentioned before that mom had “chemo brain.” I on the other hand have developed a super sensitivity to those words, “Ida Longo.” I am always eavesdropping on the other side of the door to make sure that they are taking good care of momisan. Now, because I am not bashful, I poked my head into the door and asked the doctor if everything was okay. He said, “Yes” but they could not remove the tube because it was still draining. I informed him that momisan was a cancer patient who had undergone a lymphectomy and regardless of whether the tube was left in or removed, it was still going to drain some. He looked rather irritated that I had questioned his white coat authority, so I told him to call her oncologist for further direction. Why is it some doctors hate to be questioned?
After fifteen minutes, mom emerged from the CT room a bit shaken and with some pain. Dr. “Personality” explained that he went ahead and removed the tube after speaking to her oncologist and gave us a brief synopsis of what to watch for and he disappeared down the long, white hallway. The thing with Cancer patients, especially those that have undergone surgery, chemo and radiation is that their bodies react a bit differently to treatment. So while mom’s continuing drainage might be an issue for a surgeon, for an oncologist it is a common occurrence. So my advice for anyone supporting a Cancer patient is ask those questions regardless of how irritated the “little white coats” become, especially if you are using an unfamiliar physician.
We had a technician wheel mom to the parking garage and everyone piled in for the ride home. Mom got comfy and I ran out to get a cheese pizza for lunch. We ended the day on a high note – me, mom and pop sitting on the porch, eating a slice al fresco.
As my birthday nears its conclusion, I was contemplating what I would wish for. Thirty years ago it was a pony, Babies and one of those Easy Bake ovens. During the past few years, I realize that I no longer wish or really want for anything tangible. I guess that is a sign of maturity when you realize that your house is in order and you don’t really want for anything – life is SUPERB!
One would think that there are not too many things on my eighty year old mother’s “must see” list. She has done a lot and seen so much more. I remember on my thirtieth birthday, before I had met my husband, I would sometimes wonder if mom would see me married…I know she thought the same thing too! Thankfully, we crossed that off the list three years ago. Now I would be lying if I said I did not think about her being around for at least one grandchild on the Conley side of the tree – that would just put her over the edge of uncontrollable euphoria. And yes, I know at 38, my window of opportunity is closing! I can’t help it if it took James so long to get here.
So that is my birthday wish tonight, God…as selfish as I know it sounds. Please let my mom enjoy many mores years on this earth to witness the birth of another grandchild. That is the greatest gift I could ever receive, to see my mom hold my baby like she held me thirty-eight years ago, today.
Val
(Looking a little tired today, but holy cannoli...look at that hair growing in. The texture has changed and it's a very nice "salt and pepper" mixture.)
Thursday, March 8, 2007
ChemoSabe Rides Again!
"A fiery horse with the speed of light, a cloud of dust, and a hearty Hi-Ho, Cancer…Away! Return with us now to those thrilling treatments of yesteryear. ChemoSabe rides again!"
Okay, so perhaps I “adjusted” the original Lone Ranger intro to suite my needs, but what do you expect…after all, these are the ChemoSabe Chronicles. ;o)
Today I arrived at Casa de Longo to take mom to her oncologist. I figured pop could use a little break and Mom and I were well overdue for a lunch date…even though she sees me, Andy and pop everyday, sometimes it’s good just to get out and mingle with non-Longos. :o)
We arrived at the Dream Team’s office only to be greeted like the prodigal son. There were hugs and kisses and numerous conversations to bring everyone up to speed on what has been going on since her last radiation. What should have been our follow-up visit after completing radiation was more of a shortened version of the classic board game Clue as we tried to figure out why momisan was draining fluid. It was nodes, in the Pelvic Room with Lymph Fluid!
It turns out that my super sleuthing was correct. Mom does indeed have a condition called lymphocele. Since her surgery required that the lymph nodes be removed from the pelvis, there is really no place for that fluid to go. It should be absorbed by the body, but due to the radiation, it may have temporarily impeded the body from doing that. Which in turn caused the pelvic mass of fluid – it was like a lymph system traffic jam.
Her oncologist said that as long as the drainage tube was in, the fluid would continue to drain. But if we remove the drainage tube, the body may now have the ability to absorb the fluid and the only way to tell was to remove the drain and then watch her carefully for any signs of swelling. The condition may or may not be re-occurring, but we won’t know for a few months.
Before we could schedule a time for momisan to have the tube removed, her oncologist wanted to confer with the infectious disease doctor one last time. He would not give a directive for removal until he knew that there was no sigh of sepsis, infection or any other bacteria in the fluid or in her blood. If the lymph fluid was just that, clear lymphatic fluid, then we could take the tube out with no worries. I am happy to report that her oncologist confirmed that everything is good and we have scheduled the procedure for Monday afternoon. The interventional radiologist should have her in and out by dinner time as it is a relatively simple and quick procedure.
As far as her Cancer treatment goes, she will indeed have to have another round of chemo. But right now, her body needs time to heel from battling this infection. Even her oncologist said she looks a little tired so the best thing to do was to post-pone the final round of chemo for thirty days. I am sure mom was a little disappointed that she had to have another round, but she knows that she has come too far to turn back now.
Someone once asked me how someone her age, can fight so hard…and the answer is simple. She does it for me. She does it for Andy. During her most recent hospital stay, she told me that she often prays to God to get her through another day because of all the time and love that we have invested in her. It’s not that we didn’t do it before she got sick, but for those of you who have traveled down this same path, you know that your love and devotion is magnified to a much higher level – a level that you didn’t think existed. That’s why she fights. In her mind she feels that she owes it to us. She fights to see her granddaughters play softball or to come over for Nan and Pop day. She fights in the hopes to see another grandchild soon. Now, I don’t say that to imply that we are expecting anything in return or feel that mom owes us something, or to portray us as some horn tooting, Cancer martyrs; but for anyone who has ever been beside someone fighting Cancer, you know that they get from day to day by fighting for something or someone that they love – Mom fights for us and I think that is one hell of an honor.
I am sure I will be on pins and needles for the next thirty-days. Mom and I talked about having to post-pone her treatment and I think she was concerned that she might have to start it all over again. She also posed the question that by waiting; it might cause the Cancer to rear its ugly head again because we have not yet completed the entire treatment plan that was developed for her in the beginning. But her oncologist said that since we completed three rounds of chemo and 25 radiation treatments and her last CT scan was clean, that the odds are currently in our favor. Our biggest hurdle is mom’s age. You can’t pound an eighty year old woman with treatments because as strong as she is, her body needs a break. So please join us in saying a few extra prayers this month that the good Lord will keep her in a holding pattern and just allow her to rest and get stronger to face her final round.
We ended the day by grabbing a little lunch and as we were discussing the days events, we were soon surrounded by the cops…okay, just one…Andy. He stopped by to join our little lunch gang and once again, I sat back and pondered my world. My head was replaying something mom had said earlier in the day – “A lot of wonderful things have come out of this journey” and you know, she is right. As I have often said numerous times before, the things that we consider as a curse sometimes hold the greatest blessings. Today, I am a better daughter, wife, sister and human being. All of our relationships have changed. Some for the better and some...well, let's just move on. The most important thing is that majority have proven to each other that when times are tough, we will be there to comfort, inspire and love one another…that’s what family does.
I have often heard people say that we should live our life with no regrets. For some that means having more material things than living life by the “Golden Rule.” Some believe he/she with the most toys in the end wins. But the truth of the matter is that those who are always trying to simply do the right thing are the ones who truly understand that is the only way to live life with no regrets.
Okay, so perhaps I “adjusted” the original Lone Ranger intro to suite my needs, but what do you expect…after all, these are the ChemoSabe Chronicles. ;o)
Today I arrived at Casa de Longo to take mom to her oncologist. I figured pop could use a little break and Mom and I were well overdue for a lunch date…even though she sees me, Andy and pop everyday, sometimes it’s good just to get out and mingle with non-Longos. :o)
We arrived at the Dream Team’s office only to be greeted like the prodigal son. There were hugs and kisses and numerous conversations to bring everyone up to speed on what has been going on since her last radiation. What should have been our follow-up visit after completing radiation was more of a shortened version of the classic board game Clue as we tried to figure out why momisan was draining fluid. It was nodes, in the Pelvic Room with Lymph Fluid!
It turns out that my super sleuthing was correct. Mom does indeed have a condition called lymphocele. Since her surgery required that the lymph nodes be removed from the pelvis, there is really no place for that fluid to go. It should be absorbed by the body, but due to the radiation, it may have temporarily impeded the body from doing that. Which in turn caused the pelvic mass of fluid – it was like a lymph system traffic jam.
Her oncologist said that as long as the drainage tube was in, the fluid would continue to drain. But if we remove the drainage tube, the body may now have the ability to absorb the fluid and the only way to tell was to remove the drain and then watch her carefully for any signs of swelling. The condition may or may not be re-occurring, but we won’t know for a few months.
Before we could schedule a time for momisan to have the tube removed, her oncologist wanted to confer with the infectious disease doctor one last time. He would not give a directive for removal until he knew that there was no sigh of sepsis, infection or any other bacteria in the fluid or in her blood. If the lymph fluid was just that, clear lymphatic fluid, then we could take the tube out with no worries. I am happy to report that her oncologist confirmed that everything is good and we have scheduled the procedure for Monday afternoon. The interventional radiologist should have her in and out by dinner time as it is a relatively simple and quick procedure.
As far as her Cancer treatment goes, she will indeed have to have another round of chemo. But right now, her body needs time to heel from battling this infection. Even her oncologist said she looks a little tired so the best thing to do was to post-pone the final round of chemo for thirty days. I am sure mom was a little disappointed that she had to have another round, but she knows that she has come too far to turn back now.
Someone once asked me how someone her age, can fight so hard…and the answer is simple. She does it for me. She does it for Andy. During her most recent hospital stay, she told me that she often prays to God to get her through another day because of all the time and love that we have invested in her. It’s not that we didn’t do it before she got sick, but for those of you who have traveled down this same path, you know that your love and devotion is magnified to a much higher level – a level that you didn’t think existed. That’s why she fights. In her mind she feels that she owes it to us. She fights to see her granddaughters play softball or to come over for Nan and Pop day. She fights in the hopes to see another grandchild soon. Now, I don’t say that to imply that we are expecting anything in return or feel that mom owes us something, or to portray us as some horn tooting, Cancer martyrs; but for anyone who has ever been beside someone fighting Cancer, you know that they get from day to day by fighting for something or someone that they love – Mom fights for us and I think that is one hell of an honor.
I am sure I will be on pins and needles for the next thirty-days. Mom and I talked about having to post-pone her treatment and I think she was concerned that she might have to start it all over again. She also posed the question that by waiting; it might cause the Cancer to rear its ugly head again because we have not yet completed the entire treatment plan that was developed for her in the beginning. But her oncologist said that since we completed three rounds of chemo and 25 radiation treatments and her last CT scan was clean, that the odds are currently in our favor. Our biggest hurdle is mom’s age. You can’t pound an eighty year old woman with treatments because as strong as she is, her body needs a break. So please join us in saying a few extra prayers this month that the good Lord will keep her in a holding pattern and just allow her to rest and get stronger to face her final round.
We ended the day by grabbing a little lunch and as we were discussing the days events, we were soon surrounded by the cops…okay, just one…Andy. He stopped by to join our little lunch gang and once again, I sat back and pondered my world. My head was replaying something mom had said earlier in the day – “A lot of wonderful things have come out of this journey” and you know, she is right. As I have often said numerous times before, the things that we consider as a curse sometimes hold the greatest blessings. Today, I am a better daughter, wife, sister and human being. All of our relationships have changed. Some for the better and some...well, let's just move on. The most important thing is that majority have proven to each other that when times are tough, we will be there to comfort, inspire and love one another…that’s what family does.
I have often heard people say that we should live our life with no regrets. For some that means having more material things than living life by the “Golden Rule.” Some believe he/she with the most toys in the end wins. But the truth of the matter is that those who are always trying to simply do the right thing are the ones who truly understand that is the only way to live life with no regrets.
For the next thirty days, momisan will get some rest and her body will have time to recover. Who knows, maybe in a few weeks we will take her on a little road trip (close to home) just to add a little fun and adventure into the mix. As always we thank each of you for the phones calls, emails, personal visits, letters and cards – Casa de Longo is looking like a Hallmark annex but mom can feel the love and well wishes from each and every one of you.
Blessing to you all!
ChemoSabe
Wednesday, March 7, 2007
Our Boy is a Killer
I had a Wild Kingdom moment in my back yard yesterday. My husband, James and I have two beautiful puppy dogs. We thought we would see if we could keep them alive before we added kids to the mix. :o)
I am happy to say that “our boys” are healthy, loved and probably spoiled. One dog, Ryker is like a little sentry. He is always on guard and looks rather menacing with those pointy ears and perfect posture. Then there is Ruger. We call him our special needs dog because he hasn’t a care in the world and can entertain himself for hours with his squeaky tennis ball.
Well, before I headed over to Casa de Longo for my daily visit, I decided to let “the boys” out to frolic and take care of business. Within minutes, I was on the back porch trying to wedge my way in-between Ryker and a huge Grackle (one of those giant black birds)…let’s just say that the bird lost.
I was horrified that my seemingly loving four-legged furbaby was a killer in disguise. But as I later explained to mom, I could not be angry with him, because certain breeds of dogs are genetically imprinted to hunt – no matter how domesticated they get.
This afternoon, “the killer” and I were sitting on the back porch and I started to think how watching him stalk his prey was very similar to fighting cancer.
Even though cancer is sometimes not diagnosed immediately, somewhere along the line you see something or some event occurs that grabs your attention – much like the bird (hopping along) that peaked Ryker’s interest. Then, you find yourself playing the waiting game. While you may not hide in the tall grass like my dog, you do become much more vigilant and watchful to see exactly what you are dealing with. You are basically sizing up your opponent, much like my furbaby and his Grackle.
Now, once you know exactly what you are up against (size and grade of the tumor and any sign that it has metastasized) then you are ready to move in for the attack. Much like my puppy dog, you have two approaches fast and furious or slow and cautious. There are some cancer patients that have extremely aggressive treatments while others have a more delicate course of treatment. But either way, the end result for each is the same…to take Cancer down, fast and with some type of finality. Much like the Grackle, I would prefer that momisan’s Cancer stay down for the count and not show any signs of life once we are finished with her treatments.
As I continued to watch my “killer” sun himself on the porch, I was thankful for his ability to remind me, in his own furry little way, what an amazing attack team we have. Our treatment plan is aggressive and while we have had a few set backs, we have made significant progress in moving this Cancer into remission.
Last night, mom’s nurse came by to change the dressing on her drainage tube and she gave mom the once over and then asked her if she was sure she was eighty. Mom said, “Yes, indeed” and her nurse said that she is in remarkable health. I reminded mom that eighty is the new sixty! And that, my friends is what gets us through those long days. When her medical team reiterates what we already know – that she is strong, healthy and making great progress on her road to recovery. As a side note, don’t shake her hand, she has gotten freakishly strong since the chemo and she has developed a G.I. Kung-Foo Grip! :o)
Tomorrow is a new day and hopefully we will have an answer as to why there is still an excessive amount of lymph fluid draining from her body. We can’t more ahead until the cause of the drainage is found and a course of action is taken to stop it. So please continue to pray that her oncologist will be able to ease the drainage tomorrow so we can all pile back onto this Crazy Train and make out way to our final destination – remission.
Val
Here is the “Killer” innocently posing with his family. From left to right: Val, Ryker aka “Killer”, James and Ruger.
I am happy to say that “our boys” are healthy, loved and probably spoiled. One dog, Ryker is like a little sentry. He is always on guard and looks rather menacing with those pointy ears and perfect posture. Then there is Ruger. We call him our special needs dog because he hasn’t a care in the world and can entertain himself for hours with his squeaky tennis ball.
Well, before I headed over to Casa de Longo for my daily visit, I decided to let “the boys” out to frolic and take care of business. Within minutes, I was on the back porch trying to wedge my way in-between Ryker and a huge Grackle (one of those giant black birds)…let’s just say that the bird lost.
I was horrified that my seemingly loving four-legged furbaby was a killer in disguise. But as I later explained to mom, I could not be angry with him, because certain breeds of dogs are genetically imprinted to hunt – no matter how domesticated they get.
This afternoon, “the killer” and I were sitting on the back porch and I started to think how watching him stalk his prey was very similar to fighting cancer.
Even though cancer is sometimes not diagnosed immediately, somewhere along the line you see something or some event occurs that grabs your attention – much like the bird (hopping along) that peaked Ryker’s interest. Then, you find yourself playing the waiting game. While you may not hide in the tall grass like my dog, you do become much more vigilant and watchful to see exactly what you are dealing with. You are basically sizing up your opponent, much like my furbaby and his Grackle.
Now, once you know exactly what you are up against (size and grade of the tumor and any sign that it has metastasized) then you are ready to move in for the attack. Much like my puppy dog, you have two approaches fast and furious or slow and cautious. There are some cancer patients that have extremely aggressive treatments while others have a more delicate course of treatment. But either way, the end result for each is the same…to take Cancer down, fast and with some type of finality. Much like the Grackle, I would prefer that momisan’s Cancer stay down for the count and not show any signs of life once we are finished with her treatments.
As I continued to watch my “killer” sun himself on the porch, I was thankful for his ability to remind me, in his own furry little way, what an amazing attack team we have. Our treatment plan is aggressive and while we have had a few set backs, we have made significant progress in moving this Cancer into remission.
Last night, mom’s nurse came by to change the dressing on her drainage tube and she gave mom the once over and then asked her if she was sure she was eighty. Mom said, “Yes, indeed” and her nurse said that she is in remarkable health. I reminded mom that eighty is the new sixty! And that, my friends is what gets us through those long days. When her medical team reiterates what we already know – that she is strong, healthy and making great progress on her road to recovery. As a side note, don’t shake her hand, she has gotten freakishly strong since the chemo and she has developed a G.I. Kung-Foo Grip! :o)
Tomorrow is a new day and hopefully we will have an answer as to why there is still an excessive amount of lymph fluid draining from her body. We can’t more ahead until the cause of the drainage is found and a course of action is taken to stop it. So please continue to pray that her oncologist will be able to ease the drainage tomorrow so we can all pile back onto this Crazy Train and make out way to our final destination – remission.
Val
Here is the “Killer” innocently posing with his family. From left to right: Val, Ryker aka “Killer”, James and Ruger.
Tuesday, March 6, 2007
It’s not Personal…It’s Cancer
First of all, I have to give a shout out to mom and Team Loco. We achieved landmark status today…we have been Googlized! That’s correct, if you go to Google and type ChemoSabe into the search box, our little blog, The ChemosSabe Chronicles, appears on the first page of results. Mom is a superstar in cyberspace and that would explain some of the lovely and encouraging emails we have gotten from others in different states across the U.S. - people facing cancer that find some similarity and humor in our parallel universe.
My mind was pondering in the shower this morning (I do some of my best thinking there) on how we sometimes interpret things too personally. For instance, when I visited momisan yesterday, she said she had received a few phone calls asking why she didn’t call to let someone know she was sick or in the hospital. Sometimes when you are in the midst of flying IV tubing and trying to dodge a nurse on a mission, wielding a pointy needle…you just forget. As her child and part of Team Loco, I sometimes forget.
We try and keep everyone in the loop as best we can. We field phone calls, emails, blog and rely on others to spread the word because the truth of the matter is there are not enough hours in the day to make 30 or more separate phones calls to keep everyone up to speed. For those who have taken a similar journey, you will understand that there are days when you are taking care of someone and days when you are catching up on all those things you have put on hold to either be a caregiver or a supporter. Most people are extremely understanding. But if you have not gotten an update from me, pop or Andy, please do not be offended. It’s not Personal…It’s Cancer.
I am happy to report that yesterday I found momisan and pop sunning themselves on the back porch at Casa de Longo. I stayed for a short visit and mom told me that hey had enjoyed a backyard picnic with the latest grub dropped by the Food Fairy (bbq pot roast with some homemade coleslaw). Today is her follow-up with the radiologist that sutured in her drainage tube, so we are hoping for some good news on that front.
For those of you that read this blog, I am sure that you understand the reasons why we share it with you. It is not to impress you, but to inspire you. If we can help just one person or family facing cancer understand that they are not alone, then we have accomplished what we have set out to do. When you have moments of doubt, if you can recall the 80 year-old lady in Texas that is putting up one hell of a fight, and that gets you to another day in your journey, then we are happy to share our story. If you find laughter and joy in the midst of sorrow and fear, then giving you a glimpse into our silly side is worth it. When you feel alone, know that there is unity with those who walk the same path. When you find hope in the midst of defeat, then we are happy to share our progress as well as the set backs. And when you can find your blessings within the swirling waters of chaos, you will know why I consider this journey a privilege and priceless experience between me and my mom.
It is definitely not a journey for the faint of heart or the self-absorbed. You have to be an unsolicited “giver” if you expect to walk with a patient and be of any benefit to them. I for one am proud to be a card caring member of Team Loco!
Thank you all for your prayers, love and encouragement.
Val
My mind was pondering in the shower this morning (I do some of my best thinking there) on how we sometimes interpret things too personally. For instance, when I visited momisan yesterday, she said she had received a few phone calls asking why she didn’t call to let someone know she was sick or in the hospital. Sometimes when you are in the midst of flying IV tubing and trying to dodge a nurse on a mission, wielding a pointy needle…you just forget. As her child and part of Team Loco, I sometimes forget.
We try and keep everyone in the loop as best we can. We field phone calls, emails, blog and rely on others to spread the word because the truth of the matter is there are not enough hours in the day to make 30 or more separate phones calls to keep everyone up to speed. For those who have taken a similar journey, you will understand that there are days when you are taking care of someone and days when you are catching up on all those things you have put on hold to either be a caregiver or a supporter. Most people are extremely understanding. But if you have not gotten an update from me, pop or Andy, please do not be offended. It’s not Personal…It’s Cancer.
I am happy to report that yesterday I found momisan and pop sunning themselves on the back porch at Casa de Longo. I stayed for a short visit and mom told me that hey had enjoyed a backyard picnic with the latest grub dropped by the Food Fairy (bbq pot roast with some homemade coleslaw). Today is her follow-up with the radiologist that sutured in her drainage tube, so we are hoping for some good news on that front.
For those of you that read this blog, I am sure that you understand the reasons why we share it with you. It is not to impress you, but to inspire you. If we can help just one person or family facing cancer understand that they are not alone, then we have accomplished what we have set out to do. When you have moments of doubt, if you can recall the 80 year-old lady in Texas that is putting up one hell of a fight, and that gets you to another day in your journey, then we are happy to share our story. If you find laughter and joy in the midst of sorrow and fear, then giving you a glimpse into our silly side is worth it. When you feel alone, know that there is unity with those who walk the same path. When you find hope in the midst of defeat, then we are happy to share our progress as well as the set backs. And when you can find your blessings within the swirling waters of chaos, you will know why I consider this journey a privilege and priceless experience between me and my mom.
It is definitely not a journey for the faint of heart or the self-absorbed. You have to be an unsolicited “giver” if you expect to walk with a patient and be of any benefit to them. I for one am proud to be a card caring member of Team Loco!
Thank you all for your prayers, love and encouragement.
Val
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