Saturday, March 3, 2007

Flying Food Fairies!

I have received a few emails asking if my mom’s infection has any correlation with her surgery to remove her tumor back in September. So I thought I would clarify incase someone else is facing the same symptoms.

When she was diagnosed with endometrial cancer back in September of 2006, her gynecological oncologist removed everything, including the lymph nodes. Lymph nodes are fascinating little things. They are part of the immune system and they are the body’s filter. The lymph fluid contains large quantities of the “infection fighters” - white blood cells. The nodes and lymph fluid filter out bacteria, infection and foreign materials that can be hazardous to the body – pretty nifty, huh?

For most people diagnosed with cancer, the only way to find out if the cancer has spread is to examine the lymph nodes. For those diagnosed with endometrial cancer, this is how the cancer is staged and graded. But here is where things can get a little bit tricky. Sometimes, no matter how cautious a surgeon is, when the lymph nodes have been removed, a few stragglers may be left behind. The nodes are microscopic and very hard to see with the naked eye. If nodes are left behind, the lymph fluid collects in them causing a condition known as lymphocele. Now, in most cases, the lymph nodes left behind will be reabsorbed by the body, but in mom’s case, her left behind nodes apparently missed that memo, so the fluid just continued to collect in those left behind nodes until they formed a large mass.

So, that is the reason that she still has that lovely drainage tube. It allows the lymph fluid to leave the body and in a few days, the remaining nodes should collapse and be absorbed. Now, lymphocele is predominantly found in those who have undergone renal transplant or any type of gynecological surgery for cancer. So if you fall into one of those two categories (or no someone who has) be on the look out for fever, chills, abdominal pain or any visible signs of swelling in the pelvic region.

While there is no concrete correlation between mom’s lymphocele infection and her surgery, the doctor does believe that some of the nodes were left behind which served as the catalysis for this latest medical episode. No one is at fault. There is really no way to tell who will fall victim to lymphocele and who will not – just be vigilant if you are in a caregiver position.

Now that we have that all cleared up, we have had two good days at Casa de Longo. Mom is slowly returning to her routines, even though I think there are days when she probably does too much too fast, but for those that know her that will not come as a surprise. Her nurse came by and she was amazed that at the age of 80, mom’s only real illness has been the cancer – it’s good genes! Mom really liked her nurse and she was extremely helpful in getting the physical therapy and follow-up appointments all lined up for mom.

It’s a relief to have her back home. She has come along way in two days and I really think that has a lot to do with being in one’s own environment. I am a firm believer that when we are surrounded by things that are both familiar and comforting to us, we have a tendency to feel much more relaxed and I think that definitely aides in the healing process. Besides, it makes it much easier for Andy and me to check on her (and pop) a few times during the day.

I am also glad to report that our “Meals on Wheels” deliveries have resumed. It’s not that mom and pop can’t cook for themselves, but a few times a week, I always make a little extra, as does Andy. It’s hard to take care of someone who has a major illness, especially when it spans a few months - everyone needs a break now and then. So during those times when momisan doesn’t feel like cooking, we try and give them a cooking reprieve.

Tonight’s delivery was chicken stew with fresh herbs, veggies and baby red potatoes and flaky biscuits. When I arrived at Casa de Longo, I knocked on the door (I avoid the bell for fear mom is resting) and after a few moments, I let myself in. (sorry you gave me that key…aren’t you? ) ;o)

I found the living room empty and as I tip-toed my way to the bedroom to check on mom, I found the cutest sight…mom and pop were napping! Even though we are in a holding pattern until pop’s CT scan for his ocular cancer, I am sure he gets tired like the rest of us.

I left a note on the counter and put dinner in the fridge and quietly snuck out of the house like a giant church mouse! Mom called me three hours later and said that the most amazing thing had happened…Food Fairies had come while they were sleeping and they had left a lovely meal in the fridge for which her tummy was truly thankful for. Now before anyone thinks my mom has been hitting her meds too hard, she didn’t really see Food Fairies, she knew it was me…but it was totally cute when she called. :o)

Here’s a big round of applause for all the Food Fairies who manage to drop care packages to cancer patients and/or their families. Every random act of kindness and support that is shown to a family struggling with cancer is both priceless and appreciated.



Find your blessings this weekend!

Val